I had a frightening night the previous night. Pete had been vomitting as you all know, but on Sunday night, he suddenly began to sound scary. He kept asking what time his scan was and was not coordinated. He seemed disoriented and did not remember our friends' name. On Monday morning, he did not even react to Nicole when she said goodbye to him just before school. We brought him to Mt E and he did not recognize our friends Stephen and Nancy, Eileen , Brian and myself!
At the A&E, he said he was 23 and couldn't recognize his friend Dr Euan. They immediately put him on sodium drip. He seemed a little better after that.They also did a brain scan, thankfully, no bleeding or clots.
His condition is Hyponatremia, where the sodium level is abnormally low.
The Doctors want to keep him in for a while, likely only out on Thursday. Hopefully, they can give him another dose of MTX and monitor his reaction before he goes home.
He is stable now, sodium level creeping up. Nonetheless, still sleeping lots and can't stay awake.
We thank you for your continued prayers for his recovery. We request that you do not visit as he is still very drowsy. Also the chemo brings down his immunity and he cannot afford to catch anything.
Tuesday, September 14, 2010
Sunday, September 12, 2010
Pete is eating slightly more
Yesterday, we took Pete to see the Onco. They gave him a drip with an anti-nausea medication Kytril.
No more throwing up yesterday except when he got choked with the skin of the plum.
Eating a little more but energy level is still low, sleeping a lot.
This morning we made it to Mass but he was feeling drowsy and giddy. Guess the body is still adjusting to the lack of food for so many days.
Please pray that his appetite picks up and that he will be well enough for the PET scan and chemo on Monday.
Dear Friends, please storm heaven, that the PET scan will be ok. Also that he does not suffer too much after chemo again on Monday.
We thank and praise God, our loving Father for you, our prayer community, who have supported us in prayer all this time, for my cousins, Albert and Kath, Cat and Murthi who have brought us food and provided transport, for Mike for bringing Jesus in Holy Communion and the many who have shown care and love to Pete and our family.
We know that many of you read this blog and are interceeding unceasingly for us. Your prayers mean a lot to us and we believe that our Father in heaven will relent and show mercy and deliver Pete from this suffering. Today's first reading speaks of God's mercy when Abraham pleaded to God. We believe He will do the same for Pete.
No more throwing up yesterday except when he got choked with the skin of the plum.
Eating a little more but energy level is still low, sleeping a lot.
This morning we made it to Mass but he was feeling drowsy and giddy. Guess the body is still adjusting to the lack of food for so many days.
Please pray that his appetite picks up and that he will be well enough for the PET scan and chemo on Monday.
Dear Friends, please storm heaven, that the PET scan will be ok. Also that he does not suffer too much after chemo again on Monday.
We thank and praise God, our loving Father for you, our prayer community, who have supported us in prayer all this time, for my cousins, Albert and Kath, Cat and Murthi who have brought us food and provided transport, for Mike for bringing Jesus in Holy Communion and the many who have shown care and love to Pete and our family.
We know that many of you read this blog and are interceeding unceasingly for us. Your prayers mean a lot to us and we believe that our Father in heaven will relent and show mercy and deliver Pete from this suffering. Today's first reading speaks of God's mercy when Abraham pleaded to God. We believe He will do the same for Pete.
Friday, September 10, 2010
Please pray for Pete to recover
Our dear Saints and Angels
You have supported us in prayer and once again we ask you to interceed for us. Since his discharge, Pete has not been eating much. Today is bad, he threw up many times and unable to retain the food he eats.
We are not sure if it is the side effects of this new chemo. We had another dose of chemo yesterday, the first one on Monday, done in the OT itself. His energy level is low and has been sleeping. Of course, he is feeling really low too.
Please storm heaven to get him out of this situation. It is very painful to see him throw up. Also we need your continued prayers for the chemo to work very effectively so that we can get off this chemo. Most of all, Pete is doing a PET scan on Monday at 10.30am. Please pray that the cancer is only in the lungs.
Please pray that the Lord increase and deepen our faith in this time of trial.
You have supported us in prayer and once again we ask you to interceed for us. Since his discharge, Pete has not been eating much. Today is bad, he threw up many times and unable to retain the food he eats.
We are not sure if it is the side effects of this new chemo. We had another dose of chemo yesterday, the first one on Monday, done in the OT itself. His energy level is low and has been sleeping. Of course, he is feeling really low too.
Please storm heaven to get him out of this situation. It is very painful to see him throw up. Also we need your continued prayers for the chemo to work very effectively so that we can get off this chemo. Most of all, Pete is doing a PET scan on Monday at 10.30am. Please pray that the cancer is only in the lungs.
Please pray that the Lord increase and deepen our faith in this time of trial.
Tuesday, September 7, 2010
Pete is going home!
Alleluia ! Praise be to God! Pete is going home now. Thank you all for your prayers, support and love. Please continue to storm heaven fir the chemo to work. Next dose of chemo is thursday. Then again next Monday and Thursday.
update
Had talk with Dr Kong this morning. Plan is to inject MVT twice a week for 4 weeks, reduce to once a week for another 4 then once a fortnight. This will be the regime for the cranial spinal fluid. Will do the fluid test on a periodic basis to assess.will continue with Iressa for now. Will do a PET scan and blood test on Monday. This will determine the state of the lungs and any other development. Options stay on Iressa, switch to tarciva or chemotherapy. I will remain positive open. God has been good!
Monday, September 6, 2010
Update 6 sept-thank God, Pete is fine
Pete is going well after the procedure. He just had his dinner. Lousy! Tks Euan for the fruits! He had some from the basket already since dinner was bad. If all goes well, may be able to go home tomorrow if all goes well. Looks pretty sexy with spiky hair. They had to gel
it in the op. Thank you all for prayers. We ask that you continue to storm heaven for the chemo to be very effective to rid all the cancer cells.
We thank all who have joined us in prayer, offered help, housed my daughter, thanks Joyce n Rachel, Bert for sending us, Catherine for spending the entire day with me, Ramona who kept us company. Everyone else who have supported us in love and concern.
it in the op. Thank you all for prayers. We ask that you continue to storm heaven for the chemo to be very effective to rid all the cancer cells.
We thank all who have joined us in prayer, offered help, housed my daughter, thanks Joyce n Rachel, Bert for sending us, Catherine for spending the entire day with me, Ramona who kept us company. Everyone else who have supported us in love and concern.
Thursday, September 2, 2010
Next Steps - 2 Sept 2010
Dear friend and all, Thank You for your prayers. I have some new, which took Jo and myself by surprise yesterday and we are still adjusting, coping. I went for a Head and Spine MRI on 1 September. The findings from the MRI was not the usual findings I was expecting and hoping. It showed leptomeningeal spread, indication is that there are cancer cell in the cranial spinal fluid. Chemotherapy will be the course of action, however the chemo drug has to be injected directly into the cranial fluid, oral or injected medicine will not be able to penetrate the membrane that protect/isolate the cranial fluid. Met with a neurosurgeon today, he will have to create a opening and place an Omaya port on my head. He will lift a small portion of scalp, drill a small hole in the skull, insert a catheter to reach the cranial fluid and place a port, connect it to the catheter, on the skull and pull the scalp over it and stitch. Surgery scheduled about noon on Monday, will be about an hour, under GA. Will have to stay in hospital for few days for observation and likely a week medical leave at home. This port will be where the Chemo medication will be injected twice a week for now. The first dose be be given in the operating theater when the port is being placed.
I am bit anxious this round as it involves an operation on the skull and putting a tube pass the brain, blood vessel to reach the cranial fluid membrane. I ask for your prayers to guide the neurosurgeon.
Yesterday and today has been trying, we are still adapting to the news and at the same time talking to the surgeon. Many things are going through or over the head and we are trying our best to Trust God and that He will protect and guide us in the decisions we made.
I ask you for your generous prayer for my family and myself to Trust fully in God and that He will guide us and watch over us. I understand what needs to be done, I know what will happen, I believe that God is with me now, during the operation and after. But at moments of weakness I feel overwhelmed with what's happening and can't understand why ?
I am not shy to ask people to pray for us and many have already, my fellow Holy Land Pilgrim, friend from Christ the King and Holy Spirit Church and old school buddies. Can't express enough thanks to Euan for him being there for Jo and I, taught me what a true friend really means and does for you.
We are uncertain what happens after Monday but Jo and I will hold on to our Faith and trust that God will be there guiding us.
I am bit anxious this round as it involves an operation on the skull and putting a tube pass the brain, blood vessel to reach the cranial fluid membrane. I ask for your prayers to guide the neurosurgeon.
Yesterday and today has been trying, we are still adapting to the news and at the same time talking to the surgeon. Many things are going through or over the head and we are trying our best to Trust God and that He will protect and guide us in the decisions we made.
I ask you for your generous prayer for my family and myself to Trust fully in God and that He will guide us and watch over us. I understand what needs to be done, I know what will happen, I believe that God is with me now, during the operation and after. But at moments of weakness I feel overwhelmed with what's happening and can't understand why ?
I am not shy to ask people to pray for us and many have already, my fellow Holy Land Pilgrim, friend from Christ the King and Holy Spirit Church and old school buddies. Can't express enough thanks to Euan for him being there for Jo and I, taught me what a true friend really means and does for you.
We are uncertain what happens after Monday but Jo and I will hold on to our Faith and trust that God will be there guiding us.
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